Privacy Policy

Effective Date: 06/27/2026

NBIA Disorders Association ("we," "us," or "our") respects your privacy. This Privacy Policy explains what information we collect when you register for our conference, why we collect it, and how it is used and protected.

By submitting the registration form on this website, you agree to the practices described in this Privacy Policy.

1. Information We Collect

When you register for the conference, we collect the following categories of information:

• Personal Information: such as your name, mailing address, and other identifying details provided on the registration form.
• Conference Preferences: such as meal selections, daycare or childcare needs, accessibility requirements, and other preferences related to your conference experience.
• Payment Information: information necessary to process your registration fee, such as billing details. Payment card information is processed securely by our third-party payment processor and is not stored on our servers.
• Contact Information: such as your email address and phone number, used to communicate with you about your registration and the conference.

2. How We Use Your Information

We use the information collected solely for the purpose of processing your conference registration, including:

• Confirming your registration and payment
• Accommodating meal, daycare, accessibility, or other preferences you indicate
• Communicating with you about conference logistics, updates, or changes
• Responding to questions or requests related to your registration

We do not sell your personal information, and we do not use it for marketing purposes beyond communications directly related to this conference, unless you separately opt in to additional communications.

3. Google Analytics

This website uses Google Analytics, a web analytics service provided by Google, to help us understand how visitors use the registration page. This allows us to identify ways to improve and simplify the registration process over time.

Google Analytics collects information such as pages visited, time spent on the site, and general browsing behavior, typically through the use of cookies. This information is aggregated and does not directly identify you as an individual.

You can learn more about how Google uses this data, or opt out of Google Analytics tracking, by visiting Google's Privacy & Terms page or installing the Google Analytics Opt-out Browser Add-on.

4. How We Share Your Information

We do not share, sell, or rent your personal information to third parties, except as necessary to:

• Process payments (via our payment processor)
• Comply with legal obligations
• Operate this website (e.g., Google Analytics, as described above)

5. Data Retention

We retain registration information for as long as necessary to process your registration, fulfill conference-related obligations, and meet any applicable legal, accounting, or reporting requirements. Afterward, information is securely deleted or anonymized.

6. Data Security

We take reasonable administrative and technical measures to protect the information you provide from unauthorized access, use, or disclosure. However, no method of transmission over the internet or electronic storage is completely secure, and we cannot guarantee absolute security.

7. Your Choices and Rights

You may contact us at any time to:

• Ask what information we have collected about you
• Request a correction to inaccurate information
• Request deletion of your information, subject to any legal or operational requirements that may limit deletion (e.g., completed payment records)

8. Children's Privacy

This registration form is intended for use by adults registering for the conference (including registering on behalf of accompanying children for purposes such as daycare arrangements). We do not knowingly collect personal information directly from children.

9. Changes to This Policy

We may update this Privacy Policy from time to time to reflect changes in our practices or for other operational, legal, or regulatory reasons. The "Effective Date" at the top of this policy indicates when it was last updated.

10. Contact Us

If you have any questions about this Privacy Policy or how your information is being used, please contact us at:

Email: adenton@nbiadisorders.org