NBIA Disorders Association 30th Anniversary Celebration Weekend
Indianapolis, Indiana
September 26 - 27, 2026
Join us for an unforgettable weekend celebrating NBIA Disorders Association and the achievements we've reached as a community!
Day(s)
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Friday, September 25
Planning & Scientific Meetings
Drury Plaza Hotel Carmel | 9:00AM - 12:00PM
9625 North Meridian St.
Indianapolis, IN 46290
Pre-Event Meetings
(Not open to public registration. Board members, NBIA Staff, Scientific & Medical Advisors, Researchers, and Clinicians only.)
9:00 AM - 6:00 PM: Board & Staff Strategic Planning Session
2:00 PM - 4:00 PM: Scientific Meeting & Discussions
4:00 PM - 5:00 PM: SMAB Meeting
5:00 PM - 6:00 PM: Board and SMAB Joint Session
Download the Agenda
Saturday, September 26
Morning Research Presentations
Drury Plaza Hotel Carmel | 9:00AM - 12:00PM
9625 North Meridian St.
Indianapolis, IN 46290
Hear the latest updates from leading physician-scientists and
researchers advancing NBIA research and care. This session
will highlight current progress, future initiatives and advances
in clinical care.
30th Anniversary Celebration
Biltwell Event Center | 5:00PM - 11:00PM
950 S. White River Pkwy W. Dr.
Indianapolis, IN 46221
An evening honoring the families, clinicians, researchers and
supporters who have helped shape the NBIA community
over the past 30 years while looking ahead to the future of
treatment, advocacy, and hope. Join us for special
presentations, silent & live auctions, dinner and dancing.
Sunday, September 27
Family Day at Newfields
Newfields: Indianapolis Museum of Art | 11:00AM - 4:00PM
4000 Michigan Road
Indianapolis, IN 46208
Join us and enjoy time together as a community at this family-friendly day at the museum!
Beautiful outdoor gardens and green spaces
Group lunch for attendees
Full access to museum galleries
Family-friendly time to connect and celebrate
Hotel Accommodations & FAQs
Hotel Accommodations:
Drury Plaza Hotel Carmel
9625 North Meridian St
Indianapolis, IN 46290
- Complimentary hot breakfast
- Evening kickback with drinks & snacks
- Free parking
Frequently Asked Questions
Does the room block include handicap accessible rooms?
Yes it does. There are a limited number of handicapped rooms available, so they are on a first come, first served basis.
What is the dress code for the celebration evening event?
The dress code for the event is cocktail attire.
What is the youngest age you'll accept in the childcare room?
Our care room is for all ages, including adults who need care.
Where can we find accessible transportation?
Please indicate on the registration form that you need assistance with transportation. We will work directly with you to make arrangements that fit your needs.
Does my registration include museum tickets?
Yes, general registration, youth registrations, and registrations for NBIA individuals all include access to the family research sessions and the family fun day at the museum. Registrations for the celebration event only will not include admission to these additional events.
Will there be recordings shared after the event?
No, we will not be recording anything like we typically do for conferences.
Can I attend the celebration event only?
Yes, you can attend just the celebration at the event center. The cost is $80 per person. Please note that this registration does not include admission to the family research presentations and the museum family fun day.
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